Comments on: The Past, Present and Future of Online Patient Communites: A Talk With John de Souza, President and CEO of MedHelp http://significantscience.com/2009/10/29/the-past-present-and-future-of-online-patient-communites-a-talk-with-john-de-souza-president-and-ceo-of-medhelp/ Showcasing Science Thu, 11 Mar 2010 17:31:25 +0000 http://wordpress.com/ hourly 1 By: sullivan1842 http://significantscience.com/2009/10/29/the-past-present-and-future-of-online-patient-communites-a-talk-with-john-de-souza-president-and-ceo-of-medhelp/#comment-19 sullivan1842 Thu, 05 Nov 2009 14:01:38 +0000 http://significantscience.com/?p=57#comment-19 Hi, John. Thank you so much for your interesting comments. I think the best way for you to answer your questions would be for you visit the sites you mention. I think <a href="http://www.patientslikeme.com/" rel="nofollow">PatientsLikeMe </a>and the discussion list run by <a href="http://www.acor.org/" rel="nofollow">ACOR </a>are probably the best at mutual support. I spent a lot of time in the ALS community of PatientsLikeMe in 2007 and found the people there warm, courageous, kindhearted, well-versed in ALS, intelligent and interesting. Hi, John. Thank you so much for your interesting comments. I think the best way for you to answer your questions would be for you visit the sites you mention. I think PatientsLikeMe and the discussion list run by ACOR are probably the best at mutual support. I spent a lot of time in the ALS community of PatientsLikeMe in 2007 and found the people there warm, courageous, kindhearted, well-versed in ALS, intelligent and interesting.

]]> By: links for 2009-11-02 « Working Notes 2.0 http://significantscience.com/2009/10/29/the-past-present-and-future-of-online-patient-communites-a-talk-with-john-de-souza-president-and-ceo-of-medhelp/#comment-18 links for 2009-11-02 « Working Notes 2.0 Mon, 02 Nov 2009 20:23:16 +0000 http://significantscience.com/?p=57#comment-18 [...] The Past, Present and Future of Online Patient Communites: A Talk With John de Souza, President and ... the morphing of 'online patient communities' into 'e-patients, with some falling by the wayside en route – worth a check (tags: community health2.0 example participation engagement) [...] [...] The Past, Present and Future of Online Patient Communites: A Talk With John de Souza, President and … the morphing of 'online patient communities' into 'e-patients, with some falling by the wayside en route – worth a check (tags: community health2.0 example participation engagement) [...]

]]> By: John Norris http://significantscience.com/2009/10/29/the-past-present-and-future-of-online-patient-communites-a-talk-with-john-de-souza-president-and-ceo-of-medhelp/#comment-17 John Norris Mon, 02 Nov 2009 16:17:48 +0000 http://significantscience.com/?p=57#comment-17 Super interview, and a ton of information. Thank you so much for putting this together and publishing it. It is great that a site like MedHelp helps people get expert information. I also wonder how they help peers interact with each other. What sort of features (from the social media space?) or moderation policies does MedHelp use to encourage mutual support. Here, I'm trying speak about help for patients illuminated by the Illness Vs Disease distinction. On a side note, I think that virtual world support groups may offer some interesting opportunities and wonder why webMD, Mehelp, etc has not explored this area more. (Maybe I've just missed it.) Super interview, and a ton of information. Thank you so much for putting this together and publishing it.

It is great that a site like MedHelp helps people get expert information. I also wonder how they help peers interact with each other. What sort of features (from the social media space?) or moderation policies does MedHelp use to encourage mutual support. Here, I’m trying speak about help for patients illuminated by the Illness Vs Disease distinction.

On a side note, I think that virtual world support groups may offer some interesting opportunities and wonder why webMD, Mehelp, etc has not explored this area more. (Maybe I’ve just missed it.)

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